The direct project link is here: http://www.indiegogo.com/projects/83374?a=511088

As of this posting the project is at 22% funding and has 47 days to go!

This is not just a typical journal with blank pages. Although it will contain plenty of pages for personal reflection, it is also a journal that has been carefully thought out so that it will contain the pertinent information needed during a doctor’s visit. It’s generated in a way that can get information in the doctor’s hands most immediately so that the focus is on the patient and resolving issues during the appointment- not in sifting through reams of notes.

In addition to creating a beautiful printed version that includes a cover with the EDS zebra mascot along with a place to write in the owner’s name, a FILLABLE PDF version will also be created for those that prefer to keep their information electronically.

While some of the information is typical medical information that is ideal to have written down anyway, it has been expanded to take into consideration the complex issues that Ehlers-Danlos patients deal with.

As with all Dr. Tinkle’s publishing endeavors, this effort is being made to better serve his patient population. The emphasis is not on making a profit. That being said, hard cover books that are the size of a textbook can be quite expensive to produce. Therefore, this project is being put on IndieGoGo to both a) test the viability of such a project for the EDS population and b) to assuage the upfront expenses.

Link to the project: http://www.indiegogo.com/projects/83374?a=511088#

About Ehlers-Danlos Syndrome

Ehlers-Danlos (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility.  There are six major types of EDS. Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles, and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a “glue” in the body, adding strength and elasticity to connective tissue. (Definitions taken from the Ehlers-Danlos National Foundation website: www.ednf.org).

The app walks a medical professional such as a physical therapist or a physician through the process of determining whether a patient has Ehlers-Danlos Syndrome Hypermobility Type / Hypermobility Syndrome. It includes audio narration by Dr. Tinkle that explains the photos being displayed as indicators. Photos of examples of joint hypermobility are included to demonstrate what a professional should look for in determining a diagnosis. Alongside the photos are key reference points to look for with regard to EDS / Joint Hypermobility.

The iPad-specific app is meant primarily for professionals as a reference point. The download itself is available for free in the iTunes store. Patients that suspect they have EDS / Joint Hypermobility have also downloaded the app to use in consulting their primary care physicians.

Dr. Tinkle spoke at the EDNF (Ehlers-Danlos National Foundation) conference on “Neck and Head Pain in EDS” in July of this year and displayed the app to a number of colleagues. He is the EDNF Chair of the Professional Advisory Network and a member of the national EDNF Board of Directors.

To celebrate the success of Dr. Tinkle’s book and to increase knowledge on joint hypermobility / EDS overall, Left Paw Press has reduced the price of “The Joint Hypermobility Handbook” to twenty dollars (USD) on its website.  Additionally, “The Joint Hypermobility Handbook” was available in the EDNF store at the newly reduced price during the conference in Baltimore in July.

About Dr. Brad T. Tinkle

Brad T. Tinkle, MD, PhD specializes in connective tissue and bone disorders as an Associate Professor of Clinical Pediatrics at Cincinnati Children’s Hospital.  He is the Director of the Skeletal Dysplasia Center and Connective Tissue and Ehlers-Danlos Clinics.  He also is an Associate Director of the Molecular Genetics Laboratory.

About Left Paw Press

Left Paw Press is the publishing imprint of Lauren Originals, Inc. that produces niche medical, marketing, and pug children’s books headquartered in Greens Fork, Indiana USA.

Dr. Tinkle spearheaded a study to determine the prevalence, frequency, and disability of migraines in female patients vs. a control population.  The findings are presented in a paper titled, “Joint hypermobility syndrome: A common clinical disorder associated with migraine in women.” Results indicated that the prevalence of migraine was 75% in joint hypermobility syndrome (JHS) patients vs. 43% in the control population. The study suggests that JHS is a clinical disorder strongly associated with an increased prevalence, frequency, and disability of migraine in females.

In collaboration with several colleagues, Dr. Tinkle studied the prevalence of cardiac findings in hypermobile and classic Ehlers-Danlos syndrome and provided longitudinal analysis of aortic root growth in a paper titled, “Cross-sectional and longitudinal assessment of aortic root dilation and valvular anomalies in hypermobile and classic Ehlers-Danlos syndrome.” The study concluded that, although aortic root size and mitral valve prolapse (MVP) are increased in patients with EDS, they tend to be of little clinical consequence. Echocardiography may still be warranted, but decreased frequency of screening in recommended.

A poster titled, “Lessons Learned: Myths and Facts about Ehlers-Danlos Syndrome” was presented by Dr. Tinkle during the American College of Human Genetics College in Vancouver Canada.

Dr. Tinkle will be speaking at the EDNF (Ehlers-Danlos National Foundation) conference on “Neck and Head Pain in EDS” in July.

About Dr. Brad T. Tinkle

Brad T. Tinkle, MD, PhD specializes in connective tissue and bone disorders as an Associate Professor of Clinical Pediatrics at Cincinnati Children’s Hospital.  He is the Director of the Skeletal Dysplasia Center and Connective Tissue and Ehlers-Danlos Clinics.  He also is an Associate Director of  the Molecular Genetics Laboratory.

About Left Paw Press

Left Paw Press is the publishing imprint of Lauren Originals, Inc. that produces niche medical, marketing, and pug children’s books.

Lauren L. Darr, President of LOI International and interviewer, said, “Pat is an amazing woman making great strides in media.  Not only has she created a platform for women, but introduced technology to help others expand their platform also.  It was fantastic to have her as an interviewee for the book.”

“The Official LOI International Media Outlook Book” Overview

With today’s convergence and economy, smart companies are making moves to sustain and grow.  The media conglomerates of today will not be the same in two, five, or twenty years from now.  This book is a series of conversations with several of today’s top trendsetters to see how media will be different over the next couple years.

“The Official LOI International Media Outlook Book” is a resource that paints a picture of the media landscape in a way that incorporates all facets of media— and how they must work together to be successful.

Aside from getting up-close insight into the minds of these thought leaders, you’ll get an understanding of:

-       Emerging technology, end-user, and operational trends

-       How media entities will converge over the next couple years

-       Technological changes that will affect every aspect of life

Join in these conversations with author Lauren L. Darr as she chats with several thought leaders that are both behind the scenes and in the public eye.

The book is scheduled to launch in April 2010. Pre-orders are now being accepted.  Left Paw Press, the publishing imprint of Lauren Originals, Inc, publishes this book.

About LOI International

LOI International is the ultimate marketing ‘relationshipper’ for B2B and technology companies— working with companies that love to play ‘what if’ while maintaining a laser-focus on maximizing their potential.  LOI does that not only by planning and implementing traditional communications efforts, but by also creating original ways of connecting clients with the different personalities and resources clients need to reach.  What that means for clients is an assurance that their marketing is aligned with their revenue potential in a way that spurs contagious success.  LOI International is based in the Midwest USA and is the marketing consulting arm of Lauren Originals, Inc.

Lauren L. Darr, President of LOI International and interviewer, said, “I’ve had the honor of knowing Jim for more years than I’ll admit. During that time, it’s been amazing to watch the brainstorming and development that has gone into technologies that have shaped how we interact with media.  Jim has been a behind-the-scenes person during those discussions.  His input for this project was essential.”

“The Official LOI International Media Outlook Book” Overview

With today’s convergence and economy, smart companies are making moves to sustain and grow.  The media conglomerates of today will not be the same in two, five, or twenty years from now.  This book is a series of conversations with several of today’s top trendsetters to see how media will be different over the next couple years.

“The Official LOI International Media Outlook Book” is a resource that paints a picture of the media landscape in a way that incorporates all facets of media— and how they must work together to be successful.

Aside from getting up-close insight into the minds of these thought leaders, you’ll get an understanding of:

-       Emerging technology, end-user, and operational trends

-       How media entities will converge over the next couple years

-       Technological changes that will affect every aspect of life

Join in these conversations with author Lauren L. Darr as she chats with several thought leaders that are both behind the scenes and in the public eye.

The book is scheduled to launch in April 2010. Pre-orders are now being accepted.  Left Paw Press, the publishing imprint of Lauren Originals, Inc, publishes this book.

About LOI International

LOI International is the ultimate marketing ‘relationshipper’ for B2B and technology companies— working with companies that love to play ‘what if’ while maintaining a laser-focus on maximizing their potential.  LOI does that not only by planning and implementing traditional communications efforts, but by also creating original ways of connecting clients with the different personalities and resources clients need to reach.  What that means for clients is an assurance that their marketing is aligned with their revenue potential in a way that spurs contagious success.  LOI International is based in the Midwest USA and is the marketing consulting arm of Lauren Originals, Inc.

Lauren L. Darr, President of LOI International and interviewer, said, “Erik has uncovered some amazing statistics and insights in his book.  His viewpoint was one of definite value as an interviewee for The Official Media Outlook Book project.”

“The Official LOI International Media Outlook Book” Overview

With today’s convergence and economy, smart companies are making moves to sustain and grow.  The media conglomerates of today will not be the same in two, five, or twenty years from now.  This book is a series of conversations with several of today’s top trendsetters to see how media will be different over the next couple years.

“The Official LOI International Media Outlook Book” is a resource that paints a picture of the media landscape in a way that incorporates all facets of media— and how they must work together to be successful.

Aside from getting up-close insight into the minds of these thought leaders, you’ll get an understanding of:

-       Emerging technology, end-user, and operational trends

-       How media entities will converge over the next couple years

-       Technological changes that will affect every aspect of life

Join in these conversations with author Lauren L. Darr as she chats with several thought leaders that are both behind the scenes and in the public eye.

The book is scheduled to launch in April 2010. Pre-orders are now being accepted.  Left Paw Press, the publishing imprint of Lauren Originals, Inc, publishes this book.

About LOI International

LOI International is the ultimate marketing ‘relationshipper’ for B2B and technology companies— working with companies that love to play ‘what if’ while maintaining a laser-focus on maximizing their potential.  LOI does that not only by planning and implementing traditional communications efforts, but by also creating original ways of connecting clients with the different personalities and resources clients need to reach.  What that means for clients is an assurance that their marketing is aligned with their revenue potential in a way that spurs contagious success.  LOI International is based in the Midwest USA and is the marketing consulting arm of Lauren Originals, Inc.

Cauthen commented, “Lauren has worked extremely hard to complete the Media Outlook Book and she is on the cutting edge of where radio will be going in the next decade.  Her insights should be mandatory reading for every manager and owner in our industry.”

Lauren L. Darr, President of LOI International and interviewer, said, “Bob is one of the most well-respected people in broadcast.  His understanding of where radio has been and what is happening in the media landscape was an essential part of the book.  I’m elated he agreed to participate in the project.”

“The Official LOI International Media Outlook Book” Overview

With today’s convergence and economy, smart companies are making moves to sustain and grow.  The media conglomerates of today will not be the same in two, five, or twenty years from now.  This book is a series of conversations with several of today’s top trendsetters to see how media will be different over the next couple years.

“The Official LOI International Media Outlook Book” is a resource that paints a picture of the media landscape in a way that incorporates all facets of media— and how they must work together to be successful.

Aside from getting up-close insight into the minds of these thought leaders, you’ll get an understanding of:

-       Emerging technology, end-user, and operational trends

-       How media entities will converge over the next couple years

-       Technological changes that will affect every aspect of life

Join in these conversations with author Lauren L. Darr as she chats with several thought leaders that are both behind the scenes and in the public eye.

The book is scheduled to launch in April 2010. Pre-orders are now being accepted.  Left Paw Press, the publishing imprint of Lauren Originals, Inc, publishes this book.

About LOI International

LOI International is the ultimate marketing ‘relationshipper’ for B2B and technology companies— working with companies that love to play ‘what if’ while maintaining a laser-focus on maximizing their potential.  LOI does that not only by planning and implementing traditional communications efforts, but by also creating original ways of connecting clients with the different personalities and resources clients need to reach.  What that means for clients is an assurance that their marketing is aligned with their revenue potential in a way that spurs contagious success.  LOI International is based in the Midwest USA and is the marketing consulting arm of Lauren Originals, Inc.

“The Official LOI International Media Outlook Book” Overview

With today’s convergence and economy, smart companies are making moves to sustain and grow.  The media conglomerates of today will not be the same in two, five, or twenty years from now.  This book is a series of conversations with several of today’s top trendsetters to see how media will be different over the next couple years.

“The Official LOI International Media Outlook Book” is a resource that paints a picture of the media landscape in a way that incorporates all facets of media— and how they must work together to be successful.

Aside from getting up-close insight into the minds of these thought leaders, you’ll get an understanding of:

-       Emerging technology, end-user, and operational trends

-       How media entities will converge over the next couple years

-       Technological changes that will affect every aspect of life

Join in these conversations with author Lauren L. Darr as she chats with several thought leaders that are both behind the scenes and in the public eye.

The book is scheduled to launch in April 2010. Pre-orders are now being accepted.  Left Paw Press, the publishing imprint of Lauren Originals, Inc, publishes this book.

About LOI International

LOI International is the ultimate marketing ‘relationshipper’ for B2B and technology companies— working with companies that love to play ‘what if’ while maintaining a laser-focus on maximizing their potential.  LOI does that not only by planning and implementing traditional communications efforts, but by also creating original ways of connecting clients with the different personalities and resources clients need to reach.  What that means for clients is an assurance that their marketing is aligned with their revenue potential in a way that spurs contagious success.  LOI International is based in the Midwest USA and is the marketing consulting arm of Lauren Originals, Inc.

Lauren L. Darr, President of LOI International and interviewer, said, “Lou has a unique perspective from both a broadcast and online standpoint.  I highly valued his interview for the book and was delighted that he was willing to participate in the project.”

“The Official LOI International Media Outlook Book” Overview

With today’s convergence and economy, smart companies are making moves to sustain and grow.  The media conglomerates of today will not be the same in two, five, or twenty years from now.  This book is a series of conversations with several of today’s top trendsetters to see how media will be different over the next couple years.

“The Official LOI International Media Outlook Book” is a resource that paints a picture of the media landscape in a way that incorporates all facets of media— and how they must work together to be successful.

Aside from getting up-close insight into the minds of these thought leaders, you’ll get an understanding of:

-       Emerging technology, end-user, and operational trends

-       How media entities will converge over the next couple years

-       Technological changes that will affect every aspect of life

Join in these conversations with author Lauren L. Darr as she chats with several thought leaders that are both behind the scenes and in the public eye.

The book is scheduled to launch in April 2010. Pre-orders are now being accepted.  Left Paw Press, the publishing imprint of Lauren Originals, Inc, publishes this book.

About LOI International

LOI International is the ultimate marketing ‘relationshipper’ for B2B and technology companies— working with companies that love to play ‘what if’ while maintaining a laser-focus on maximizing their potential.  LOI does that not only by planning and implementing traditional communications efforts, but by also creating original ways of connecting clients with the different personalities and resources clients need to reach.  What that means for clients is an assurance that their marketing is aligned with their revenue potential in a way that spurs contagious success.  LOI International is based in the Midwest USA and is the marketing consulting arm of Lauren Originals, Inc.